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Emily Post of wheelchair etiquette

I've been in my wheelchair now for over a year - sometimes it seems like 20 and others times seems like days. Depends on a lot of things including my mood for the day (whether my 'get-up-and-go' got up and went), the weather (let's face it even the heartiest of Michiganders don't always want to venture out in blustery, snowy or icy days) and what's on the agenda (if I have a date with my hubby or going to see the not-so-little Piggins).

Another variable, about my attitude towards the wheelchair, however is what I believe I will receive from some people when they see me in the wheelchair. What I mean is, some people see ME in a wheelchair and others see me in a WHEELCHAIR. Many times someone will see me coming and give me a look of sorrow or pity - it's a look that gets under my skin and makes me want to scream "You don't see me -I'm not pitiful I'm in a wheelchair!" (actually, what I want to scream sometimes includes a few four-letter words!) I am still the same Kathleen Piggins - sometimes brash, sometimes funny, sometimes mellow, sometimes theatrical and always strong-willed. (John likes to call me stubborn, but I'm strong-willed and there's a difference!) So when I get that look of pity, I know for sure they don't know me, and all they see is the wheelchair. 

My sister, Kerri, has had a few more years than me four-wheeling and I have learned a lot while watching her gracefully navigate this world while rolling. One thing for certain, after you spend just a short while with Kerri, you forget she's in a wheelchair - almost nothing stops her (she IS stubborn!) and her beautiful smile and quick wit soon charm the most irascible. But she, too, has received the sorrowful look and I once asked her (this was before I was rolling too) how she handled it. And she told me to just ignore it that some people just don't understand. So, I'm trying to ignore those looks from people but I thought I'd use my blog to let the gazillion readers (give or take a few million!) know a few points of etiquette:

~    When you see a person in a wheelchair - don't stare! (Children do it frequently and they often ask about my 'stroller' and that's okay. Not so much from an adult. And yes it happens.)
~    When you see a person in a wheelchair - don't give them a look of sorrow or pity. Most don't want your pity, we don't want to be seen as pitiful or different.
~     If you see a person four-wheeling that is struggling to do something like open a door or navigate a ramp - don't just open the door or give them a push, ask them first if they would like help. It feels more respectful.
~    If you're using a public restroom and there are plenty of open stalls, don't take the accessible stall because you never know when someone might roll in and the accessible stall is the only one they can use.

I know as soon as I finish this, I will think of a few more points of etiquette. Feel free to add them below (if you have any). Or if you have a question, post it here too - if I don't have an answer I'll ask someone wiser.

Got to go sip from my half-full glass!

Comments

It's not a popularity contest, but ...

When an ass is so much more

  Body image. Body positivity.  Or about coming to an appreciation for a previously much maligned back end.  In junior high (that's middle school for all of you non boomers), I was given the nickname "big butt Bowen". It was a nickname that stung because I did indeed have a large ass. I tried to mask it, a difficult endeavor since the current fashion (and remember this is junior high when fitting in was paramount) was wearing hip hugger jeans with midriff tops and my disguise of choice were peasant blouses or dresses. That style choice earned an additional nickname, Mama Cass. For those of you that don't know who Mama Cass was, she was part of the Mamas and Papas and known for her beautiful voice but also for her large body.  All about Mama Cass I was cruelly nicknamed at a time when nicknames can really mess with a girl's psyche. And I spent a lifetime as that girl with the messed up psyche. I'm sure there are more than one of you out there that can relate. B

Peter Pan no more

                          It's time. Peter Pan had to grow up.  For nearly 18 months of his life, Matthew dressed in this costume. In this picture it's new, just out of the box. He picked the costume out of a catalog and when it arrived, two weeks prior to Halloween, he asked daily if today was the day he could finally wear his Peter Pan costume. He didn't like the hat and only wore it on Halloween, but the rest of the costume he wore daily! You read that correctly - DAILY. He wore it to Meijer (for those of you unfamiliar with Meijer, it's a cleaner, friendlier, more 'upscale' version of WalMart), to church, to play dates and preschool ... Heck, he was three and adorable and it worked for him!  (Yes you read that correctly, he even wore it to church on one or two occasions when it seemed arguing with a three year old about not wearing a costume to church was not a battle worth waging. He once mentioned the priests wore dresses . . . I don't think Joh

Cabin fever made me do it!

Like nearly ever person in West Michigan, I have a serious case of cabin fever.  I won't waste your time however, complaining about the two-hundred feet of snow that's fallen in the last two hours. I won't share about the twenty or thirty times I've had to shovel my walk today as gusts blew it right back in my face. And I certainly will not lament about the temperatures that hover around negative double digits making your nostrils freeze together within moments of stepping outside. To bore you with tales of how we have to shovel areas in our yard so that our large dog and can do his 'duty' because the snow is deeper than he is tall and dogs for whatever reason cannot poop in the same place twice, is not what I will share. You will not hear about how when I open the slider to let aforementioned dog outside, gusts of wind blow drifts of snow inside and require a shovel to once again close the door.  Nor will I share how some roads around here are drifted shut be