The Glass is Half-Full

  I spent the last 45 days of 2024 suffering with a wee bit of the plague.  It didn't completely stop me, but it came close. I only briefly came out of my isolation to participate in the Lakeshore Community Chorus' holiday concert, to take care of the world's most adorable bairn and then celebrate his first birthday, to attend Christmas Eve worship, to see the bio-pic of Bob Dylan, celebrate NYE with the previously mentioned adorable grandson and his parents and to have short visits with my daughter from a different mother/father and her adorable daughter. I don't think I missed any 'events'. After each of these 'events' I then went back to my cocoon (the recliner in the living room, with my blankie and water bottle). There I could cough, sneeze and ache in relative comfort with my tissues, Mucinex and Advil nearby. I also discovered the comfort of an occasional hot toddy. When there were no signs of improvement, I went to my doctor and she prescribed an...

  I understand that there are those who may believe my use of the term 'gimp' is derogatory or demeaning. I do not use it lightly or to belittle anyone, it's just a lot easier for me to than 'disabled' or 'handicapped' because it uses a little snark or humor to something that could use a little of that. Or in this case, I specifically want to make light of my situation so that it doesn't feel depressing. For you or me. Let me try to explain.  One of my pet peeves is the look of sympathy I get from well-meaning people. Like, "Aw, sweetie, I am so sorry that you are less abled, confined to a wheelchair and less able to live the full, active life that I lead."  I am in a wheelchair most of the time and my life is different because of that but in truth I never wanted to run a marathon of play pickleball or climb Mt. Baldhead (I've done the latter too many times usually bringing up the rear of the group I was with and/or being cheered on by the ...

  I am not sure if its aging, the current state of chaos in the world or something more personal, but I have had a difficult time in the past couple years finding the positive in everything. It used to be my superpower. Hence the title of the blog, the glass is half-full. Instead, I find myself struggling to find that positivity in all things. Its like my superpower has been voided by kryptonite or something sinister. And as its happened I've simply succumbed like a weak-assed ninny, laying down my the shield that protected my positive mindset and opening it up to the onslaught of skepticism and mistrust. The durability of my positive mindset was replaced with an attitude of 'oh what the hell-ism'. My desire to go out in the world and conquer all curmudgeons with my steadfast will to make them smile has been overcome by the that ever-forceful and evil lassitude. While I've not reached that state of my glass being half empty, its more like the glass is half full-ish. ...

Okay all of you 'struggling to stand' or 'not wanting to have to use a wheelchair' or others that look upon using a wheelchair as a symbol of failure, you're about to get punched. Punched in the figurative sense. I am about to go on my soap box and my Irish is up which means that I'm fairly peeved (though I've been mulling this over for awhile so I'm not as angry as I once was, which means there will be fewer expletives and a kinder tone). If you've read this blog or know me at all, you know that I did not go easily into using a wheelchair as my primary mode of transport. I too, may have had a little bit of your attitude about the wheelchair being sign of failure or of having given up. My sister, Kerri, helped put it in a different light. She said, and I'm paraphrasing here, "It's actually an energy saver since walking is stressful and you're worried about falling - using a wheelchair will take away a lot of that stress. You will hav...

I have been living with MS since 1992 - I used the calculator on my phone to determine that it's 29 years (because unlike the man pictured above my math skills are lacking). That's a long time and you don't need to be mathematically inclined to come to that conclusion. And when first diagnosed, my neurologist declared that with all the research he believed a cure was imminent likely 'within five years'. that would mean that we would have had the cure 24 years ago. We don't. So I am grateful I didn't wager any money on Dr. Wiley's prediction.  But what we do have, instead of a cure, is a plethora of pharmaceuticals to help stem this disease's progression and help us live fuller lives, longer. I am happy for that but am also curious and a tad skeptical because these drugs cost a person living with MS a lot of money and pharma has no financial incentive to search for the cure when they can keep us living less gimpy lives for many years reliant on their ...

Remember when 9/11 was just a date or a number you called in an emergency? Our lives changed dramatically post 9/11. For weeks after that September day, we seemed to walk around in a fog, like the haze that loomed over the now-fallen twin towers. I remember trying to minimize my obsession with the news, trying to keep the three little Piggins away from the enormity of the disaster. Remember when corona was simply a beer best served with a lime wedge? It now and forever will be instead associated with this virus that has upended our world in ways we could never have imagined. This tiny little, microscopic virus has brought the mighty to their knees. It has us quarantined and distancing socially (though I believe we've been doing this emotionally for years) and working from home. As anxiety peaks, our economy tanks. As toilet paper and hand sanitizer flies off the shelves, we are looking for new ways to stock our pantries. A good friend observed, "I never thought I'd...