Skip to main content

When it snows and blows

 be careful what you wish/pray for.

On Christmas Eve, I was lamenting the lack of snow.

"When it's winter, I'd rather there was snow on the ground," I mused, "instead of this ugly grayness."

Well, there's snow on the ground and plenty of it. In fact, I estimate about 250 inches (though we all know how bad I am at math) and there's more coming down and even more in the forecast.

Looking out, it's kind of pretty. Like a snow globe. As a four-wheeler, I feel though almost trapped inside that snow globe because traversing the snow is difficult and messy in a wheelchair. Imagine pushing a stroller through a sandy beach and you have an inkling about the challenges of propelling my chair through deep snow.

And sometimes, getting the snow off the wheels of the chair is a frustrating task. I towel off the wheels, but they are still a little wet and/or dirty. Imagine coming in from the snow, wiping your boots on a mat but then walking in to the house with those boots still on. They'd surely make a wee bit of a mess on the floors. Now you have an inkling of the additional challenge presented by coming in with a wheelchair from the snow covered walks.

And those are just a couple reasons why being a four-wheeler  in the snowy winter is a challenge.

Comments

It's not a popularity contest, but ...

Friday Night Lights

Friday night lights were blazing last week - when for the first time in the history of our little town, the Saugatuck Indians clinched the district title! You can see the sheer joy on Matthew's face and the pride in his father's eyes in the picture above. Leading up to and during the game, there were several things that made the victory even more sweet. The first being that the sports writers in the area, to a person, all predicted the opponents, Climax-Scotts, to win. They'd had a perfect season - until Friday. The second was that we had to travel quite a distance (nearly 90 minutes) to get to the game. And the weather was frigid and snow was blowing - thankfully it was blowing towards the Climax-Scotts stands and was at our backs. And then our quarterback injured his shoulder and had to sit out for a good portion of the game. Thankfully, the replacement quarterback (a sophomore called up for the playoffs from the junior varsity team) did not let the stress effect his ...

Don't cry for me ...

Song lyrics or titles run through my mind to often sum up a situation or add humor to one. Today, it's "Don't Cry for Me Argentina". Only today the title is "Don't cry for me anybody"! I mean, I get it, that people feel bad that I've got breast cancer and that I've been living with MS for nearly 27 years. And I've had other issues that I've blogged about related to #metoo. I get that it seems like a lot looking in from the outside. I hear your comments and appreciate your support. But here's the thing, it doesn't feel overwhelming to me, looking out from the inside. Know what I mean? I live the life that I've been dealt and do it with the personality and faith I've been given. Which means, I could do one of the following: A. Have a miserable, pity-me attitude that would lead to being  miserable; B. Lean into my troubles and seek answers constantly either through research or angrily with God, which would lea...

I had to use a calculator

I have been living with MS since 1992 - I used the calculator on my phone to determine that it's 29 years (because unlike the man pictured above my math skills are lacking). That's a long time and you don't need to be mathematically inclined to come to that conclusion. And when first diagnosed, my neurologist declared that with all the research he believed a cure was imminent likely 'within five years'. that would mean that we would have had the cure 24 years ago. We don't. So I am grateful I didn't wager any money on Dr. Wiley's prediction.  But what we do have, instead of a cure, is a plethora of pharmaceuticals to help stem this disease's progression and help us live fuller lives, longer. I am happy for that but am also curious and a tad skeptical because these drugs cost a person living with MS a lot of money and pharma has no financial incentive to search for the cure when they can keep us living less gimpy lives for many years reliant on their ...