Skip to main content

Work of art or a work in progress!


Last fall, I was asked if I wanted my portrait painted as part of an exhibit entitled "Moving Through the Unimaginable". The requester was a young woman I have long admired, but for the moment I began to doubt my admiration for her because she described the exhibit's subjects as having 'endured adversity or trauma or disease with grace'. I didn't initially see how I fit into that description, but after some discussion with my hubby and reflection, Whitney's (the requester) esteem in my eyes was restored and I agreed.

I was looking at myself through my own eyes. Know what I mean??

I don't see myself as exuding any grace as I've 'endured' my experience with M.S. In actuality, I get quite ticked on days like today when the sun is shining and everyone seems to be out enjoying the sunshine and balmy 42 degrees (I live in Michigan and 42 in March is a heat wave!) walking their dog, or biking or just walking. I know my pure-bred mutt Wally would like it too! 

Through my eyes, I see the woman that longs to able to do all the things I'm unable to do anymore. Like just leashing up Wally and going for a walk. The inability in that scenario has as much to do with Wally's size and personality (he's a large, strong dog who has never met a stranger and likes to explore and not listen to me!) as my current reliance on four-wheels as my modus operandi.
There are many times when I sit at home and have a full-blown pity party complete with loud music and swearing. Yes, some of the awful four-letter words that if uttered aloud in public could get you arrested. (I live in Michigan, where a woman complained to the sheriff about some young men swearing and those young men were ticketed or jailed or fined because there is a law!) Or I see the woman that stopped fully-participating in this thing called life because it was too damn difficult to schlep her wheelchair in the cold and snow; so she mostly sat at home adding pounds and adding up excuses.

So, I have these thoughts and have been known to call myself and this disease by some really awful-make-a-sailor-blush names. But I didn't and don't want anyone else to have pity on me or look at me they way I have at times looked at myself, so I would pull up my big girl pants and venture out. I'd smile when I didn't feel like it and almost triple-dog dare you, with my smile to feel sorry for me. Here's the clincher - I found the more I lived out there with my peeps the more grace I found for me. 

I'm pretty resilient (if you've read any of my posts you know what I mean) and I have managed through most trials to truly find a bright side. Not superficially, either, been to genuinely see some good. And once I spent time reflecting more  on that, I realized that going through the unimaginable with grace doesn't mean an absence of bad days or sailor-swearing. I'm work in progress like all of us, after all. And that, dear readers, is my take away. Plus the artist, Donna St. John, did an exceptional job on the portrait that we'll get to keep (it is NOT going over the fireplace) and with all the outstanding works in the exhibit. 

Did you ever in your wildest dreams imagine that little old me would be a work of art??? A piece of work maybe! Click below to learn more about this fabulous exhibit.

Moving Through the Unimaginable

Comments

It's not a popularity contest, but ...

Rolling, Rolling, Rolling

I put my pride aside and got my ass off the grass and into the wheelchair. {I spent a couple minutes deciding whether to put an exclamation mark after that declaration or to put the period after that statement. I think the period better suits my mood about getting said ass into the wheelchair!} On July 4, Saugatuck has a wonderfully unique parade that includes quirky participants like the artsy-fartsy campers at OxBow art colony and the LGBT members of a local foundation along with the more traditional participants like Girl Scouts, fire trucks, and local politicians. It had been a couple years since I had been to the parade, this year, though, my Mom and sister were in town and I wanted to take them. So we loaded up in the van, including Kerri's wheelchair and my own. Once we parked, John asked if I wanted to use my chair and I initially balked but then remembered that it can be a long, hot parade and it might be better to have a place to sit. So, I acquiesced and took the cha...

Down 24

My life has been a lot like this roller coaster. Not just ups and downs, but several twists and turns. Sometimes I am whooping for joy, hands in the air ready for the what lies ahead while at other times I can see a loop or drop coming and the dread is palatable, the nausea is real. And also like a roller coaster is my weight. I've never been svelte but I have been within the BMI range. I have also been overweight and more recently the scale put me in the obese category. And that should have scared me into action but instead I just made excuses or rationalizations like "It's because I use a wheelchair to get around," or "I'm sure once X happens I'll lose that weight," or (my favorite) "It's just water weight/constipation". (Like all I needed was one really good poop and I'd be at my target weight! No plunger in the world could have worked! Like comedian Ron White says 'Just one really good dump from a new pant si...

Wally is on weight watchers

If you've read my blog in the past or know me from the 'real world', you know about my pup Wally. Well, this 105 pound lap dog is now on a diet. Yep, one too many loaves of Asiago cheese bread stolen from off the counter. Or two too many peanut butter and treat stuffed Kongs. Or could it be that he's been too good at his job of Pre-Wash leaving no crumb (but plenty of green vegetables) un-licked. It certainly could be that his sweet, adorable face has garnered him a few (hundred?) extra treats. Or that a certain someone has soft-spot and can't ignore Wally's laser-focus stare while eating her breakfast/lunch/dinner compelling her to share a small morsel. I have to blame you and your charm (well, not completely because I am a push-over). Whatever the reason, my companion and I are now on Weight Watchers together. Instead of two cups of kibble twice a day, Wally will now get one and a half. No table food from a certain someone that is me no matter how guilty...