Skip to main content

Hair today gone tomorrow

Before you all begin to think I’m breezing completely through chemo, let me remind you of this:


  For the most part I am bald. Or if not completely bald, fuzzy headed, and not in the way I think or am thinking, but in the appearance. A little like a hedgehog or a porcupine with bald patches.

On Super Bowl Sunday while most of you were overeating or filling out those little squares to wager on the upcoming game, John and I were having a unique pre-game party. In front of our bathroom mirror with clippers and scissors. Preparing for the certainty of hair loss from my chemo, I decided to buzz my locks to lessen the shock and mess of of losing large chunks of my silver, shoulder-length hair. It was in all honesty one of the most poignant moments in our 30+  year marriage.

I had originally asked my friend and former stylist if she could do it . But when I shared my plan with John, he said that he wanted to do it. Certainly that was not expected.

So instead of watching the pre-game, we buzzed my locks. I didn't think I'd be emotional. I thought it would just be a small step, another task on my project list that is Project Beat Cancer. I found myself shedding tears, however, and feeling such remorse, a deep sense of loss. I accused John of giving the worst haircut ever, and we laughed.

It's only hair, I remember thinking a couple months ago when I was told that I would be losing mine. I was not grasping, at that time, all that it meant. And as I looked at my balding head and the pile of silver hair on the floor, and counter and all over my clothes, I realized it was now a very public display of what had been up to that point a fairly private experience. I realized then that my hair may never be the same as I'll never be the same. And I realized as I watched my husband using clippers on my hair, that our marriage just became stronger because the depth of emotion and the connection we forged were profound.


Now weeks later, I'm much more use to the head with minimal hair and finding head covers to wear when out and about. I'm not even sure I will get a wig. Perhaps for the wedding in July.

On Tuesday, I got a Facetime from Delaney. She had just trimmed her hair for an organization that provides wigs for cancer patients, to stand in solidarity with her mom! Her beautiful locks will now be adorning another person's head. She looks gorgeous with her shorter hair. And I was cut short (pun intentional), speechless at her courage and tribute. Another moment, so profound, I cannot find the words to express my emotion accurately.

So I will take a leap of faith, by showing you what the new (albeit temporary) me looks like. Without makeup, headcovering or more noticeably, hair.






Comments

Post a Comment

It's not a popularity contest, but ...

Friday Night Lights

Friday night lights were blazing last week - when for the first time in the history of our little town, the Saugatuck Indians clinched the district title! You can see the sheer joy on Matthew's face and the pride in his father's eyes in the picture above. Leading up to and during the game, there were several things that made the victory even more sweet. The first being that the sports writers in the area, to a person, all predicted the opponents, Climax-Scotts, to win. They'd had a perfect season - until Friday. The second was that we had to travel quite a distance (nearly 90 minutes) to get to the game. And the weather was frigid and snow was blowing - thankfully it was blowing towards the Climax-Scotts stands and was at our backs. And then our quarterback injured his shoulder and had to sit out for a good portion of the game. Thankfully, the replacement quarterback (a sophomore called up for the playoffs from the junior varsity team) did not let the stress effect his ...

Vulnerability hangover

I recently blogged about my own #MeToo experiences and then went silent. (At least on the blog). Those posts have been read by over 1000 people, and that's a lot for this tiny little blog about living a life with MS and God and with a sense of humor. Suddenly, I felt like I was living in a world where people that read my blog had x-ray vision and could see my nakedness - but I didn't know who they were. It wasn't a good feeling. And then I heard someone discuss Brene Brown, in particular what she describes as a 'vulnerability hangover'. It's essentially the feeling of regret, like after a night of binge drinking, when you think "What did I do/say?" and then "I think I'll just hide out from the world." If you've never had that experience, kudos to you. It's shame, pure and simple, ugly and raw. So, now I'm on a Brene Brown binge, including all of her TED talks. Including this one on shame:  Brene, listening to shame ...

When being negative is positive and other wonky 'things' in the time of Covid

The world is upside down and back ass-ward. Know what I mean? I was chatting with a cousin the other day and her potential exposure to the corona virus. I wrote, "I'll say prayers for negative results for all. Don't like negativity but these days negative is a positive." Back ass-ward. Remember when we first went in to shut-down mode in mid-March? We were told that it was to flatten the curve of hospital admissions so that our ICU's didn't run out of capacity and to ease the virus' spread. It felt then like we were in this together, all of us were going to help beat this virus and stay home. (Aside from the run on toilet paper!) We were committed, or so it seemed, and our closets were going to be cleaned, our junk drawers were going to be a thing of the past, our garages/basements/and other yucky places were going to gleam. We were going to read "War and Peace" or "Hamilton" or other weighty tomes that we'd always wanted to read. We...