Skip to main content

I'm melting

I love the Wizard of Oz. My favorite production, of course, was the one done by Holland High School in 2011. My second favorite was the one done by the Peanut Butter & Jelly Players in Saugatuck with director Justine Kinnaman and a cast of children, teens and yours truly in the coveted role of the Wicked Witch. I was perfectly awful of course - but I had such fun being a little wicked. (I couldn't be too wicked and scare the audience of children).

The favorite scene was when the witch is doused with water and melts - the cast loved that scene because they actually threw water on me, the audience loved that scene because they wanted to see me melt, and I loved that scene because the lines "I'm melting. Oh you killed me and my wicked loveliness " Or something to that effect. Such fun to act out.

Well, I catch myself these days uttering those words. And not because I'm being doused, but because like 50 percent of this country, there is a heat-advisory where I live. We were in DC for one day when the temps reached 90 and for two days in Boston when they reached upwards of 90 - so I experienced how much worse the heat can be in a major city. And I pray that the city residents experiencing this heat are able to find relief.

As a person with MS, the heat can affect me more quickly than before I had this damn disease. My jaunts outside to 'soak up Vitamin D' or to water the flowers or to get the mail need to be shorter. And Lord knows how I love my Vitamin-D-soaking and how sad it makes me that on hot days it's less of a soak and more of a quick dunk.

While in Boston at the North Church, for instance, I was sitting in one of the enclosed pews where there was little air circulation. Within a minute or two, I felt overwhelmed and almost claustrophobic  fanning didn't ease heat's effect. I needed to get out near a window where the breeze could cool me and to sit still. The walk to the car was slow and I was happy for the shady path and even happier to feel the car's air conditioning.

With those thoughts in mind, I am thinking of all of my fellow MS'ers; especially those in cities or without air. Because, I imagine you're feeling a little like that green lady. You're melting.
From the Holland High School production of a Wizard of Oz.
The Wicked Witch is Geneva and the Good Witch is Delaney.

Comments

It's not a popularity contest, but ...

Don't cry for me ...

Song lyrics or titles run through my mind to often sum up a situation or add humor to one. Today, it's "Don't Cry for Me Argentina". Only today the title is "Don't cry for me anybody"! I mean, I get it, that people feel bad that I've got breast cancer and that I've been living with MS for nearly 27 years. And I've had other issues that I've blogged about related to #metoo. I get that it seems like a lot looking in from the outside. I hear your comments and appreciate your support. But here's the thing, it doesn't feel overwhelming to me, looking out from the inside. Know what I mean? I live the life that I've been dealt and do it with the personality and faith I've been given. Which means, I could do one of the following: A. Have a miserable, pity-me attitude that would lead to being  miserable; B. Lean into my troubles and seek answers constantly either through research or angrily with God, which would lea...

Navigating the world while four-wheeling

Rain, rain, go away. Don't come back another day. My hair is frizzy. Barometric pressure makes me dizzy. If I go out, wet I'll be. No umbrella hand free to protect me. I'm no Longfellow! And I don't think I'd win a poetry slam, but you get the idea. Rainy days, even when they're not Mondays, get me down. Because when you're navigating the world while four-wheeling, rain presents additional challenges. Last week, for example, the wind was blowing hard enough to blow my wheelchair seat cushion off my car where I'd placed it while removing my chair. It landed in a puddle, upside down, and rested there long enough that the absorbent material in the comfy cushion absorbed quite a bit of water. I may have let an expletive fly, because a store clerk who was standing up against the window under the protective eave, smoking a cigarette and looking at her phone, actually looked up. She didn't come to my aid, but she looked up. Thankful...

Travelling while gimpy

It was more than a little ironic that I was reading Gloria Steinem's new book "My Life On the Road" while on our recent trip to California. It was a great book (highly recommend this book!) and was partially responsible for my renewed inspiration to get back to writing on a more regular basis! She wrote from a position of absolute humility and love of humanity that I wish to emulate in my writing. Anyway, the irony was that I'm reading about this independent woman's journeys and encounters while traveling as an independent woman that's become far more dependent on others and experiencing all kinds of encounters! Mostly good, of course - because I am, after all, still relatively Pollyanna-ish! First, when in a wheelchair and flying a whole world of people and service awaits. My first encounter was in the Grand Rapids airport where we were greeted at the Delta counter and told an escort was on the way. I didn't think it was necessary, but kept my mou...