Skip to main content

I'm melting

I love the Wizard of Oz. My favorite production, of course, was the one done by Holland High School in 2011. My second favorite was the one done by the Peanut Butter & Jelly Players in Saugatuck with director Justine Kinnaman and a cast of children, teens and yours truly in the coveted role of the Wicked Witch. I was perfectly awful of course - but I had such fun being a little wicked. (I couldn't be too wicked and scare the audience of children).

The favorite scene was when the witch is doused with water and melts - the cast loved that scene because they actually threw water on me, the audience loved that scene because they wanted to see me melt, and I loved that scene because the lines "I'm melting. Oh you killed me and my wicked loveliness " Or something to that effect. Such fun to act out.

Well, I catch myself these days uttering those words. And not because I'm being doused, but because like 50 percent of this country, there is a heat-advisory where I live. We were in DC for one day when the temps reached 90 and for two days in Boston when they reached upwards of 90 - so I experienced how much worse the heat can be in a major city. And I pray that the city residents experiencing this heat are able to find relief.

As a person with MS, the heat can affect me more quickly than before I had this damn disease. My jaunts outside to 'soak up Vitamin D' or to water the flowers or to get the mail need to be shorter. And Lord knows how I love my Vitamin-D-soaking and how sad it makes me that on hot days it's less of a soak and more of a quick dunk.

While in Boston at the North Church, for instance, I was sitting in one of the enclosed pews where there was little air circulation. Within a minute or two, I felt overwhelmed and almost claustrophobic  fanning didn't ease heat's effect. I needed to get out near a window where the breeze could cool me and to sit still. The walk to the car was slow and I was happy for the shady path and even happier to feel the car's air conditioning.

With those thoughts in mind, I am thinking of all of my fellow MS'ers; especially those in cities or without air. Because, I imagine you're feeling a little like that green lady. You're melting.
From the Holland High School production of a Wizard of Oz.
The Wicked Witch is Geneva and the Good Witch is Delaney.

Comments

It's not a popularity contest, but ...

Lefties and Other Exceptional People

I have had the opportunity to do a lot of driving lately - back-and-forth to Wabash College and to-and-from Holland, Grand Rapids and East Lansing. It's given me lots of time to think and ponder the greater mysteries of the world; like the purpose of life, why my thumbnails always break first, the speed at which a state police officer will actually pull you over for and the theory of relativity. Oh, not THE theory of Relativity - with a capital 'R", created by Mr. Genius Einstein. No, my own theory of relativity - with a lower case 'r'. Created by this less-than-genius mother of three and wife of one! My theory is that the absolute worst drivers are those that drive exclusively in the left lane (I call them lefties) and the ones that believe the rules of the road apply to everyone except them (I call them exceptional people). I call it my own theory of relativity because these drivers are relatively unaware of how to drive. You know the ones that are going the spe...

Poster Child for chemo and freak of nature

I made the comment to my oncologist last week, during my chemo infusion, that I could be a poster child for chemo.  "You pretty much are," she said. I have thus far been sailing through chemo, albeit like a sailboat stuck out in the middle of Lake Michigan when the winds die and it's not moving for three to four days. Because my primary side effect has been extreme fatigue for 3-4 days post chemo. Last Saturday, 2 days post chemo, I took my shower and got dressed and announced to John that I now needed a nap - that kind of fatigue.  And being a woman who has dealt with the fatigue of MS, I thought this chemo kind would be familiar and similar to the exhaustion I feel on a hot summer day where retrieving the mail (our mailbox is at the end of our driveway) while riding my scooter to get it  feels like I've run a 5K. That kind of fatigue. This is the kind that makes it difficult to even get up, needing a nap after getting out of bed. Well that might be a little ...

I had to use a calculator

I have been living with MS since 1992 - I used the calculator on my phone to determine that it's 29 years (because unlike the man pictured above my math skills are lacking). That's a long time and you don't need to be mathematically inclined to come to that conclusion. And when first diagnosed, my neurologist declared that with all the research he believed a cure was imminent likely 'within five years'. that would mean that we would have had the cure 24 years ago. We don't. So I am grateful I didn't wager any money on Dr. Wiley's prediction.  But what we do have, instead of a cure, is a plethora of pharmaceuticals to help stem this disease's progression and help us live fuller lives, longer. I am happy for that but am also curious and a tad skeptical because these drugs cost a person living with MS a lot of money and pharma has no financial incentive to search for the cure when they can keep us living less gimpy lives for many years reliant on their ...