Skip to main content

Poster Child for chemo and freak of nature

I made the comment to my oncologist last week, during my chemo infusion, that I could be a poster child for chemo. 
"You pretty much are," she said.



I have thus far been sailing through chemo, albeit like a sailboat stuck out in the middle of Lake Michigan when the winds die and it's not moving for three to four days. Because my primary side effect has been extreme fatigue for 3-4 days post chemo. Last Saturday, 2 days post chemo, I took my shower and got dressed and announced to John that I now needed a nap - that kind of fatigue. 

And being a woman who has dealt with the fatigue of MS, I thought this chemo kind would be familiar and similar to the exhaustion I feel on a hot summer day where retrieving the mail (our mailbox is at the end of our driveway) while riding my scooter to get it feels like I've run a 5K. That kind of fatigue. This is the kind that makes it difficult to even get up, needing a nap after getting out of bed. Well that might be a little dramatic, even for me, but you get my drift. Movement equals a nap.

But that's doable. I have arranged my schedule to hold those days sacred to care for myself and rest. My work schedule consists of two days and four WW Workshops,prep and paperwork in small manageable intervals.

I have no nausea. And that could be because I'm taking the meds to prevent it as my Nurse Cratchit (John Piggins) keeps me on schedule!

******

Now, here's an embarrassing tidbit. I still have some hair.

"Why," you query would that be an embarrassment?

Because, in getting prepared for what I was assured to be a given side-effect of one of my nastier chemo drugs, I had John shave my head. And I'm wearing scarves and hats when out and about, but I still have patches of hair!! There are bald spots, but I'm not (as I was told to expect) a cue ball after three infusions.

When I shared this with the Nurse Practitioner at the high risk breast cancer center, she said (rather animatedly) "WHAT????" To which I responded, that's weird right and she agreed saying that she wasn't quite sure she had ever had a patient not lose their hair after this form of chemo.

"I'm just a freak of nature, I guess," I said.
She laughed and said, "you are indeed!" 

I'm hoping that's a good kind of freak of nature!




Comments

It's not a popularity contest, but ...

Friday Night Lights

Friday night lights were blazing last week - when for the first time in the history of our little town, the Saugatuck Indians clinched the district title! You can see the sheer joy on Matthew's face and the pride in his father's eyes in the picture above. Leading up to and during the game, there were several things that made the victory even more sweet. The first being that the sports writers in the area, to a person, all predicted the opponents, Climax-Scotts, to win. They'd had a perfect season - until Friday. The second was that we had to travel quite a distance (nearly 90 minutes) to get to the game. And the weather was frigid and snow was blowing - thankfully it was blowing towards the Climax-Scotts stands and was at our backs. And then our quarterback injured his shoulder and had to sit out for a good portion of the game. Thankfully, the replacement quarterback (a sophomore called up for the playoffs from the junior varsity team) did not let the stress effect his ...

You don't know me . . .

I stopped blogging for awhile. I know some might think that I was being lazy, or overly-involved in some community or school venture or in the middle of some really good books or projects. While all of those are true, that's not the main reason. I stopped because it felt strange to be somewhere and have someone refer to something I wrote. It was like they knew a secret about me (though secrets are not usually published on the Web) that I hadn't shared with them. Though in reality I had shared because I wrote it on the blog.  Truth be told, I don't know who reads this - I have a smattering of followers but a lot more readers. Blogger lets me see how many page views for each posting and I can even tell the referral site. The most I have had for any post was 152 and I've had readers from as far away as New Zealand (thank you Gretchen) and Alaska. Most readers are referred through Facebook. I know that if I were more diligent, I could market the crap out of the blog ...

The Peri-Empty Nest Years

I am in the midst of a 'peri-empty nest syndrome'. Don't bother wondering where that syndrome came from - I just made it up. It's a combination of perimenopause and something else I can't quite remember right now. But that something I forgot was some sort of syndrome. My nest is slowly emptying. Michael is away at college and comes home on breaks; though he may get an internship this summer and not be home at all. Matthew as a junior is looking at colleges and is busy with a myriad of activities and friends and is home between the two (activities and friends). Delaney is busy with rehearsals, practices and friends in Holland - her new high school is there. And I am the mama bird at home in the nest that still needs to be cared for watching her birdies fly away or on test runs for the big fly-off. It is a strange feeling. Everyone I know that's an empty nester says it's great after the initial shock wears off (the dads say it takes about 30 minutes, the...