Skip to main content

The Chair

It's no secret that I didn't go easily into the wheelchair - I went kicking and screaming, metaphorically at least. So when a Facebook memory came up from 4 years ago, of the day I got Hot Wheels, it was an opportunity to reflect back over those years and how this chair has changed my life and perspective.

While I still wish I didn't have secondary progressive MS that necessitated my need for a wheelchair, that I have it is a fact of life that wishing cannot change. I have prayed too, but the answer to those prayers seem to be that I'm supposed to be where I am and to be a wheeled disciple for God's grace. (If you knew me when I was in my teens and 20s you'd know that I was hell on wheels before I had wheels and led anything but a grace-filled life).

Prior to acquiescing to the wheeled life, I used to hobble along using a cane or walker and falling frequently. It was after one of those falls that I sat on the floor amid spilled groceries in tears pleading to God for an answer and help. I looked up and before me was the wheelchair I had used recently when I broke my foot. 

"No," I said looking to the ceiling, "that can't really be your answer!"

Shortly after that, I got an upgrade from that clunky, heavy, plain black chair to the lighter, jazzy red chair - aka Hot Wheels. Aside from occasional pity parties or grumble fests, I have been blessed and helped immensely by this chair. 

* By using the chair, I have more energy because I'm not exhausting my body and mind by Struggling to safely walk any distance. I didn't realize how difficult it had become to remain uppright while walking until I didn't have to do that anymore.

* I was able to tour Ireland and even received carte-blanche treatment because unlike the US they don't have the ADA so access to all buildings isn't a guarentee and to gain entry to some, the proprietors will roll out the red carpet or in this case a ramp or special entrance.

* I bumped down the cobbled streets of the Tower of London (and trust me it was bumpy!) and realized while there that if you'd been disabled in days gone by, you didn't get by easily or at all because there was no way to get around.

* I have had countless conversations with children in their strollers, because we are eye-to-eye. And never have I had a conversation with a child and not felt blessed. My wheelchair gets compared to their stroller, because its often seen as a stroller to them. They also love to the scooter carts at grocery stores that I have the privilege of riding and that I realize is really not a privilege when one is not available - but that is for another blog post.

* Going anywhere is easier when I don't have to worry about falling or actually falling. I grumble about the hassle of putting the chair in and out of the car, but not having the chair would further limit my ability to be out and about.

* My family worries a hell of a lot less about me. I can see in my mind's eye their expressions as they watch me tenuously traverse the flattest of surfaces while using a cane- it's like they're waiting for a train wreck. Conversely, they love to push me around, literally and figuratively, and this chair gives them that joy. I love to enable joy.

There are a gazillion more reasons, large and minute, that I feel gratitude for Hot Wheels but I'll not bore you with them. Instead, I'll spend time in quiet reflection.




#theglassishalffull
#msadvocate
#disabilitymatters
#izzywheels


Comments

It's not a popularity contest, but ...

When a New Year begins with only whispers of the previous year

  I spent the last 45 days of 2024 suffering with a wee bit of the plague.  It didn't completely stop me, but it came close. I only briefly came out of my isolation to participate in the Lakeshore Community Chorus' holiday concert, to take care of the world's most adorable bairn and then celebrate his first birthday, to attend Christmas Eve worship, to see the bio-pic of Bob Dylan, celebrate NYE with the previously mentioned adorable grandson and his parents and to have short visits with my daughter from a different mother/father and her adorable daughter. I don't think I missed any 'events'. After each of these 'events' I then went back to my cocoon (the recliner in the living room, with my blankie and water bottle). There I could cough, sneeze and ache in relative comfort with my tissues, Mucinex and Advil nearby. I also discovered the comfort of an occasional hot toddy. When there were no signs of improvement, I went to my doctor and she prescribed an...

When it snows and blows

  be careful what you wish/pray for. On Christmas Eve, I was lamenting the lack of snow. "When it's winter, I'd rather there was snow on the ground," I mused, "instead of this ugly grayness." Well, there's snow on the ground and plenty of it. In fact, I estimate about 250 inches (though we all know how bad I am at math) and there's more coming down and even more in the forecast. Looking out, it's kind of pretty. Like a snow globe. As a four-wheeler, I feel though almost trapped inside that snow globe because traversing the snow is difficult and messy in a wheelchair. Imagine pushing a stroller through a sandy beach and you have an inkling about the challenges of propelling my chair through deep snow. And sometimes, getting the snow off the wheels of the chair is a frustrating task. I towel off the wheels, but they are still a little wet and/or dirty. Imagine coming in from the snow, wiping your boots on a mat but then walking in to the house with...

When being negative is positive and other wonky 'things' in the time of Covid

The world is upside down and back ass-ward. Know what I mean? I was chatting with a cousin the other day and her potential exposure to the corona virus. I wrote, "I'll say prayers for negative results for all. Don't like negativity but these days negative is a positive." Back ass-ward. Remember when we first went in to shut-down mode in mid-March? We were told that it was to flatten the curve of hospital admissions so that our ICU's didn't run out of capacity and to ease the virus' spread. It felt then like we were in this together, all of us were going to help beat this virus and stay home. (Aside from the run on toilet paper!) We were committed, or so it seemed, and our closets were going to be cleaned, our junk drawers were going to be a thing of the past, our garages/basements/and other yucky places were going to gleam. We were going to read "War and Peace" or "Hamilton" or other weighty tomes that we'd always wanted to read. We...