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The Chair

It's no secret that I didn't go easily into the wheelchair - I went kicking and screaming, metaphorically at least. So when a Facebook memory came up from 4 years ago, of the day I got Hot Wheels, it was an opportunity to reflect back over those years and how this chair has changed my life and perspective.

While I still wish I didn't have secondary progressive MS that necessitated my need for a wheelchair, that I have it is a fact of life that wishing cannot change. I have prayed too, but the answer to those prayers seem to be that I'm supposed to be where I am and to be a wheeled disciple for God's grace. (If you knew me when I was in my teens and 20s you'd know that I was hell on wheels before I had wheels and led anything but a grace-filled life).

Prior to acquiescing to the wheeled life, I used to hobble along using a cane or walker and falling frequently. It was after one of those falls that I sat on the floor amid spilled groceries in tears pleading to God for an answer and help. I looked up and before me was the wheelchair I had used recently when I broke my foot. 

"No," I said looking to the ceiling, "that can't really be your answer!"

Shortly after that, I got an upgrade from that clunky, heavy, plain black chair to the lighter, jazzy red chair - aka Hot Wheels. Aside from occasional pity parties or grumble fests, I have been blessed and helped immensely by this chair. 

* By using the chair, I have more energy because I'm not exhausting my body and mind by Struggling to safely walk any distance. I didn't realize how difficult it had become to remain uppright while walking until I didn't have to do that anymore.

* I was able to tour Ireland and even received carte-blanche treatment because unlike the US they don't have the ADA so access to all buildings isn't a guarentee and to gain entry to some, the proprietors will roll out the red carpet or in this case a ramp or special entrance.

* I bumped down the cobbled streets of the Tower of London (and trust me it was bumpy!) and realized while there that if you'd been disabled in days gone by, you didn't get by easily or at all because there was no way to get around.

* I have had countless conversations with children in their strollers, because we are eye-to-eye. And never have I had a conversation with a child and not felt blessed. My wheelchair gets compared to their stroller, because its often seen as a stroller to them. They also love to the scooter carts at grocery stores that I have the privilege of riding and that I realize is really not a privilege when one is not available - but that is for another blog post.

* Going anywhere is easier when I don't have to worry about falling or actually falling. I grumble about the hassle of putting the chair in and out of the car, but not having the chair would further limit my ability to be out and about.

* My family worries a hell of a lot less about me. I can see in my mind's eye their expressions as they watch me tenuously traverse the flattest of surfaces while using a cane- it's like they're waiting for a train wreck. Conversely, they love to push me around, literally and figuratively, and this chair gives them that joy. I love to enable joy.

There are a gazillion more reasons, large and minute, that I feel gratitude for Hot Wheels but I'll not bore you with them. Instead, I'll spend time in quiet reflection.




#theglassishalffull
#msadvocate
#disabilitymatters
#izzywheels


Comments

It's not a popularity contest, but ...

Rolling, Rolling, Rolling

I put my pride aside and got my ass off the grass and into the wheelchair. {I spent a couple minutes deciding whether to put an exclamation mark after that declaration or to put the period after that statement. I think the period better suits my mood about getting said ass into the wheelchair!} On July 4, Saugatuck has a wonderfully unique parade that includes quirky participants like the artsy-fartsy campers at OxBow art colony and the LGBT members of a local foundation along with the more traditional participants like Girl Scouts, fire trucks, and local politicians. It had been a couple years since I had been to the parade, this year, though, my Mom and sister were in town and I wanted to take them. So we loaded up in the van, including Kerri's wheelchair and my own. Once we parked, John asked if I wanted to use my chair and I initially balked but then remembered that it can be a long, hot parade and it might be better to have a place to sit. So, I acquiesced and took the cha...

Don't cry for me ...

Song lyrics or titles run through my mind to often sum up a situation or add humor to one. Today, it's "Don't Cry for Me Argentina". Only today the title is "Don't cry for me anybody"! I mean, I get it, that people feel bad that I've got breast cancer and that I've been living with MS for nearly 27 years. And I've had other issues that I've blogged about related to #metoo. I get that it seems like a lot looking in from the outside. I hear your comments and appreciate your support. But here's the thing, it doesn't feel overwhelming to me, looking out from the inside. Know what I mean? I live the life that I've been dealt and do it with the personality and faith I've been given. Which means, I could do one of the following: A. Have a miserable, pity-me attitude that would lead to being  miserable; B. Lean into my troubles and seek answers constantly either through research or angrily with God, which would lea...

Hey, looks aren't everything!

It doesn't look like much - especially from this distance - but that mini van behind the tow truck was our world for many years.  Our family traveled nearly 180,000 miles and tallied up even more memories within the walls/windows of that Ford Windstar. It took us to Washington D.C., Florida, on countless trips to Illinois, Wisconsin, Indiana and St. Louis. And all around this beautiful state of Michigan. It was the vehicle of choice when taking the three not-so-little Piggins on college visits and then hauling their worldly goods to the college they chose from those visits. It was easy to distinguish from every other white mini-van because there were bumper stickers from those colleges and also a couple from their high schools! It took the three not-so-little Piggins to golf matches, baseball and football games, auditions and rehearsals. It has held the golf team and members of the band, honors choir, quiz bowl, youth group and countless other configurations of groups. And ...