Skip to main content

the call before the storm


Slam Dunk!



I'm driving yesterday to my first chemo, ready to get it started, when I get a call from my nurse at the Cancer & Hematology. After pleasantries, she said:

"So, I was reading through your chart and saw that Dr. Lynch wanted your scans done before treatment began.So it looks like we need to delay it's start. Are you on your way here?"

Okay, now it's your turn to guess which was the correct response:

A.  "Well, Alecia, that scan was not approved by insurance until just a couple days ago partially because your office didn't follow up to get it approved. But we can wait, because the delay was out of the ordinary and I don't have an aggressive, fast growing cancer. Will next Thursday work better?"

B. "WTF?? (for my kinder gentler readers that stands for Well That's Fine) I'm three minutes out and we're getting this done today!! I'm not delaying because parties related to this treatment that aren't me my husband or my doctors couldn't get their s*** together (kinder gentler readers that stands for stuff, just add another asterisk) and get the scan scheduled earlier this week or last! Get the supplies ready because I'm pulling in to the parking lot. Looking forward to seeing you soon."

C.  "Well Alecia, I'm in fact almost there and beyond ready to start this treatment. I remember the conversation with Dr. Lynch and she said that we could start the treatment before the scans, though not ideal, it wouldn't hurt to begin. It just might mean a different sort of chemo. Right? So, I'm ready to begin and will be there momentarily."

The correct and condensed version was C. Though quite honestly A and B were both plausible because the facts presented are correct; though the tone of A was far too timid/kind even for me and in B, I only swear after a glass or two of wine or at crazy drivers or anyone that harms my children or hubby.

As it was, the chemo proceeded as planned. Alecia and I overcame initial awkwardness and found some common ground. She'd consulted with the oncologist on duty, and he confirmed that it would be best to start the chemo and if the scan showed any metastasis, it would just change the dosage and timing.

So after four hours, I returned home - no side effects and loaded with prescriptions to hopefully tamper any of the more likely, unpleasant ones. I also got a Nuelasta thingy that will inject meds to boost my white blood counts - it will inject at 27 hours post treatment (tonight at 7:30!). I won't post video because it's attached to my abdomen and that hasn't seen the sun in many, many years and still bears the stretch marks of three pregnancies. Now you realize that you really DON'T want to see it!! 

Next chemo, if scans and next week's blood counts are okay, will be February 7.
One down, three of these to go!!


Comments

It's not a popularity contest, but ...

When you encounter a totally different reality

John and I arrived early for an appointment (for those of you that know my husband, you know that this is not infrequent! The story of arriving three hours early for a flight to Phoenix from Midway still gets repeated and laughed about when the 'kids' get together). We found a seat and the waiting room began to fill. We had chosen seats away from the TV where NBC's Today Show was playing, so we couldn't see what was on the screen. Another couple sat before the TV and provided commentary and as the time progressed provided a glimpse into a total different 'reality'. "Oh I can't even stand to look at him. He's so evil" "What is wrong with his hair?" "This administration will do down in history as the worst ever." "The federal government is taking over the states. There's going to be a civil war, just you wait." "They just let all those illegal aliens in and then they're going to give them weapons to take...

The world according to Gimp

  I understand that there are those who may believe my use of the term 'gimp' is derogatory or demeaning. I do not use it lightly or to belittle anyone, it's just a lot easier for me to than 'disabled' or 'handicapped' because it uses a little snark or humor to something that could use a little of that. Or in this case, I specifically want to make light of my situation so that it doesn't feel depressing. For you or me. Let me try to explain.  One of my pet peeves is the look of sympathy I get from well-meaning people. Like, "Aw, sweetie, I am so sorry that you are less abled, confined to a wheelchair and less able to live the full, active life that I lead."  I am in a wheelchair most of the time and my life is different because of that but in truth I never wanted to run a marathon of play pickleball or climb Mt. Baldhead (I've done the latter too many times usually bringing up the rear of the group I was with and/or being cheered on by the ...

Time

I have been reading through the blog entries for John's caringbridge site and am marveling that it was only a year ago we were on that awful cancer journey. In a way it seems like so much longer - especially when I look at the Patient Patient and see just how wonderfully handsome and healthy he looks! John still has periodic visits with the docs in A2 and prior to each we are both a little nervous that the docs might find something. He calls after each visit and we breathe a sigh of relief when the docs declare that all is clear! We know patients that went through treatment at the same time haven't received the same news; our concerns are grounded in reality and our sense of relief immense. In the past year, we have heard of far too many people that have received a diagnosis of cancer - prostrate, breast, throat, etc. While the type of cancer may be very different, the family's reaction and the ultimate course of treatment may vary greatly. The family and loved ones g...