Skip to main content

Patient no more!

I am thrilled to have something positive and affirming to focus on - the results of John's PET scan came back and it shows all clear!! The Ziggy cloud seems to be moving and I feel I can see the sun!!! It was the light at the end of the tunnel that has been guiding us along the way.

We will celebrate with a dinner out on Saturday - and I'm sure it will be an ongoing celebration each time we are reminded, again, about the good news. The past six months have been an arduous lesson in what is really important in this life.

We took Michael back to school on Tuesday - and this year was a lot less emotional for this mom. Maybe it's because I'm numb from the many tests endured this year. Maybe it was less disquieting because it was his second year and we knew it was a good place for Michael. Maybe it was on account that his housemates were upstanding and quite likable. Maybe because Michael, himself, was so eager to return. Most likely, however, is the combination of the all of the above.

So the patient is no longer a patient and I no longer need to be the patient caregiver (I wasn't very patient after all!). I can once again return to my place of normalcy - that of wife and overly involved mother. And maybe, this year once school resumes, I will find my discipline and return to that comfortable position of "writer". I am feeling the call.

Comments

Post a Comment

It's not a popularity contest, but ...

Lefties and Other Exceptional People

I have had the opportunity to do a lot of driving lately - back-and-forth to Wabash College and to-and-from Holland, Grand Rapids and East Lansing. It's given me lots of time to think and ponder the greater mysteries of the world; like the purpose of life, why my thumbnails always break first, the speed at which a state police officer will actually pull you over for and the theory of relativity. Oh, not THE theory of Relativity - with a capital 'R", created by Mr. Genius Einstein. No, my own theory of relativity - with a lower case 'r'. Created by this less-than-genius mother of three and wife of one! My theory is that the absolute worst drivers are those that drive exclusively in the left lane (I call them lefties) and the ones that believe the rules of the road apply to everyone except them (I call them exceptional people). I call it my own theory of relativity because these drivers are relatively unaware of how to drive. You know the ones that are going the spe...
1 comment
Read more

Poster Child for chemo and freak of nature

I made the comment to my oncologist last week, during my chemo infusion, that I could be a poster child for chemo.  "You pretty much are," she said. I have thus far been sailing through chemo, albeit like a sailboat stuck out in the middle of Lake Michigan when the winds die and it's not moving for three to four days. Because my primary side effect has been extreme fatigue for 3-4 days post chemo. Last Saturday, 2 days post chemo, I took my shower and got dressed and announced to John that I now needed a nap - that kind of fatigue.  And being a woman who has dealt with the fatigue of MS, I thought this chemo kind would be familiar and similar to the exhaustion I feel on a hot summer day where retrieving the mail (our mailbox is at the end of our driveway) while riding my scooter to get it  feels like I've run a 5K. That kind of fatigue. This is the kind that makes it difficult to even get up, needing a nap after getting out of bed. Well that might be a little ...
Post a Comment
Read more

I had to use a calculator

I have been living with MS since 1992 - I used the calculator on my phone to determine that it's 29 years (because unlike the man pictured above my math skills are lacking). That's a long time and you don't need to be mathematically inclined to come to that conclusion. And when first diagnosed, my neurologist declared that with all the research he believed a cure was imminent likely 'within five years'. that would mean that we would have had the cure 24 years ago. We don't. So I am grateful I didn't wager any money on Dr. Wiley's prediction.  But what we do have, instead of a cure, is a plethora of pharmaceuticals to help stem this disease's progression and help us live fuller lives, longer. I am happy for that but am also curious and a tad skeptical because these drugs cost a person living with MS a lot of money and pharma has no financial incentive to search for the cure when they can keep us living less gimpy lives for many years reliant on their ...
Post a Comment
Read more