Skip to main content

Travelling while gimpy



It was more than a little ironic that I was reading Gloria Steinem's new book "My Life On the Road" while on our recent trip to California. It was a great book (highly recommend this book!) and was partially responsible for my renewed inspiration to get back to writing on a more regular basis! She wrote from a position of absolute humility and love of humanity that I wish to emulate in my writing.

Anyway, the irony was that I'm reading about this independent woman's journeys and encounters while traveling as an independent woman that's become far more dependent on others and experiencing all kinds of encounters! Mostly good, of course - because I am, after all, still relatively Pollyanna-ish!

First, when in a wheelchair and flying a whole world of people and service awaits. My first encounter was in the Grand Rapids airport where we were greeted at the Delta counter and told an escort was on the way. I didn't think it was necessary, but kept my mouth shut (no small feat, I tell you. I mean I have a lot to share!) and shortly was greeted by Shaquille who whisked us through security - bypassing everyone with our shoes on! He wheeled me to our gate and since we sped through security, there was now plenty of time to chat before boarding. This nice young man works two jobs - one Monday through Friday in a factory and then on weekends at the airport helping people like me. He checked us in at the gate and without incident, this gimpy traveler was on her plane. At Minneapolis, we arrived to find a woman standing on the jetway with my wheelchair and she whisked us through a confusing maze to a waiting cart that whisked us about a gazillion miles (only a slight exaggeration!) to our gate for our connecting flight to San Francisco. The ticket agent moved our seats to be closer to the front of the plane (not first class but not row 80 either!) and then John and I went to get something to eat. We were called over the PA - by name in that mass of humanity (along with another woman in a wheelchair that was closer to 80) to board the plane. And once we disembarked in San Fran we were again greeted by a woman with my wheelchair who took us from our gate to what felt like another state to the car rental building.

This great service had for me many benefits. As a people person, I got to interact with a lot of people and listen to their stories. Joy. As a person not fond of crowds, I got maneuvered through and around throngs. Joy. And, as a person short of energy, I didn't have to waste an ounce stressing over travel. (John still did a lot of that for me, while I got to talk with whomever, wherever!) Joy.

There are, and were, frustrations of traveling while gimpy (TWG) especially in a hilly city like San Francisco for a new-to-four-wheels traveler, but what stuck out for me were not those roadblocks but the blocks that were moved for me so that I could be there. Of course, the greatest mover of blocks is John. I sometimes think he must mull over all the details to see and overcome potential problems and for that I am beyond grateful. As we were walking/rolling through San Fran with my niece Shannon and great-niece Emerson (they live in and are incredibly comfortable around this city), and going down a particularly steep hill - passersby commented, "Just let her go", to John who was holding on to my chair. We all laughed at the thought of Kathleen in her runaway wheelchair, but beneath that laughter I know there was the thought "I'm sad/mad/frightened that Kathleen has to be in the damn chair, but at least it enables her to be out and about".

Because I am a people person, this chair is a blessing because it allows me to be out-and-about; listening, laughing, living, loving all that the world has to offer and to be with God's people sharing my own joy. 

Now, I just need to get a better chair so that it's easier to maneuver (especially in snow) and lighter so it's easier to schlep. 

Comments

It's not a popularity contest, but ...

Friday Night Lights

Friday night lights were blazing last week - when for the first time in the history of our little town, the Saugatuck Indians clinched the district title! You can see the sheer joy on Matthew's face and the pride in his father's eyes in the picture above. Leading up to and during the game, there were several things that made the victory even more sweet. The first being that the sports writers in the area, to a person, all predicted the opponents, Climax-Scotts, to win. They'd had a perfect season - until Friday. The second was that we had to travel quite a distance (nearly 90 minutes) to get to the game. And the weather was frigid and snow was blowing - thankfully it was blowing towards the Climax-Scotts stands and was at our backs. And then our quarterback injured his shoulder and had to sit out for a good portion of the game. Thankfully, the replacement quarterback (a sophomore called up for the playoffs from the junior varsity team) did not let the stress effect his ...

I had to use a calculator

I have been living with MS since 1992 - I used the calculator on my phone to determine that it's 29 years (because unlike the man pictured above my math skills are lacking). That's a long time and you don't need to be mathematically inclined to come to that conclusion. And when first diagnosed, my neurologist declared that with all the research he believed a cure was imminent likely 'within five years'. that would mean that we would have had the cure 24 years ago. We don't. So I am grateful I didn't wager any money on Dr. Wiley's prediction.  But what we do have, instead of a cure, is a plethora of pharmaceuticals to help stem this disease's progression and help us live fuller lives, longer. I am happy for that but am also curious and a tad skeptical because these drugs cost a person living with MS a lot of money and pharma has no financial incentive to search for the cure when they can keep us living less gimpy lives for many years reliant on their ...

Navigating the world while four-wheeling

Rain, rain, go away. Don't come back another day. My hair is frizzy. Barometric pressure makes me dizzy. If I go out, wet I'll be. No umbrella hand free to protect me. I'm no Longfellow! And I don't think I'd win a poetry slam, but you get the idea. Rainy days, even when they're not Mondays, get me down. Because when you're navigating the world while four-wheeling, rain presents additional challenges. Last week, for example, the wind was blowing hard enough to blow my wheelchair seat cushion off my car where I'd placed it while removing my chair. It landed in a puddle, upside down, and rested there long enough that the absorbent material in the comfy cushion absorbed quite a bit of water. I may have let an expletive fly, because a store clerk who was standing up against the window under the protective eave, smoking a cigarette and looking at her phone, actually looked up. She didn't come to my aid, but she looked up. Thankful...